Living with Cyclic Vomiting Syndrome, or Why you should take me and my disease seriously
I made the mistake of googling “cyclic vomiting syndrome and Dilaudid” because that’s what broke my last cycle and I was looking for any current research/rationale of why, and came across a forum post with several nurses rolling their eyes at this disease and request. I found their attitudes very hurtful, and ended up drafting a very long reply. It’s rare that I talk frankly about what it’s like living with CVS, as I like to brush it off as not a big deal, not dwell on it, and not remember the public cycles I’ve had as mortifying memories but as laughable series of unfortunate events, so to speak (“lol, RTT I threw up in a plant in the hotel lobby at leakycon lol!”). But I felt sharing my honest, real experiences is important.
Reblogging because the message of this post is really important to me, and I’d like it to hopefully reach more people. Thanks for giving it a read, if you do! It’s a very transparent look at a part of my life I typically try to hide or gloss over.
Reblogging again. Because Erin’s CVS still sucks.
Reposted from http://ift.tt/1ugYVnz.
